By I. Scharrer,W. Schramm

a few 23. five% of all participants and sufferers of remedy facilities accomplished the questionnaire. One extraordinary truth is that participation was once optimum among aged sufferers with critical hemophilia, while in basic terms 12. 2% of kinfolk spoke back. assessment of the consequences printed that almost all of individuals favor deal with­ ment in a hemophilia therapy heart with a excessive attractiveness, while in simple terms 2. 7% contemplate therapy in a really expert perform to be adequate. the explanations for which are the need of the 24-h-availability of a doctor, usual certified exam of joints and muscle groups, documentation of product batches, laboratory assessments and reliable cooperation with different schools. As many as sixty eight. nine% of the sufferers occasionally trip greater than two hundred km. What definitely performs a job this is belief within the therapy middle and its physicians, for it really is visible that regardless of the truth that seventy four. three% re­ quested standardized therapy regimens for all remedy facilities, purely approximately 20% might swap to a closer middle. remedy with issue concentrates is usually thought of to be very secure. that's to assert, fifty eight. 1 % regard recombinant items to be very secure, while merely 24. three% suppose this for plasma items. compared, there have been frequently no significant changes saw concerning end result (factor intake, length of deal with­ ment). elevate in greatest garage temperature (47. 2%) and half-life (73%) have been the main common solutions to the query of what good points the goods may still have.

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31st Hemophilia Symposium: Hamburg 2000 by I. Scharrer,W. Schramm


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